{"slug": "first-dementia-report-2013", "title": "Dementia Register First Report \u2013 2013", "pdfUrl": "https://dhir.gov.mt/wp-content/uploads/2024/02/First-Dementia-Report-2013.pdf", "sourcePage": "https://dhir.gov.mt/en/registries/dementia/", "group": "Registry", "topic": "Dementia", "tables": [{"caption": "Table 1: Document reference by DHIR/MNDR/2013", "header": ["Document reference", "DHIR/MNDR/2013"], "rows": [["Current version", "1.1"], ["Release date", "April 2015"], ["Document owner", "Directorate for Health Information & Research"], ["Website", "https://ehealth.gov.mt/HealthPortal/chief_medical_officer/healthinfor_resear ch/registries/dementia_register.aspx"], ["Email", "healthinfo@gov.mt"], ["Telephone", "00356 25599000"]]}, {"caption": "Table 2: Version by Date, Action, Name", "header": ["Version", "Date", "Action", "Name"], "rows": [["1.1", "April 2015", "Compilation", "Dr Annalise Buttigieg Dr Roberto Debono Dr Kathleen England"]]}, {"caption": "Table 3: Age Group (years) by Live cohort of persons with dementiaat end 2013, Age-specific rates per 1000population", "header": ["Age Group (years)", "Live cohort of persons with dementiaat end 2013", "", "Age-specific rates per 1000population*", ""], "rows": [["Age Group (years)", "Females", "Males", "Females", "Males"], ["55-59", "2", "5", "0.1", "0.3"], ["60-64", "10", "2", "0.7", "0.1"], ["65-69", "19", "17", "1.3", "1.2"], ["70-74", "57", "20", "6.8", "2.8"], ["75-79", "127", "51", "15.9", "8.5"], ["80-84", "128", "54", "22.4", "15.9"], ["85-89", "95", "39", "29.9", "22.6"], ["90-94", "24", "8", "20.3", "15.7"], ["95+", "2", "1", "7.3", "11.4"], ["Total", "464", "197", "2.2", "0.9"]]}, {"caption": "Table 4: Region by Males, Females", "header": ["Region", "Males", "", "Females", ""], "rows": [["Region", "Crude rate", "95% CI", "Crude rate", "95% CI"], ["Gozo", "38.56", "(15.68, 88.49)", "88.53", "(50.39, 152.51)"], ["Northern Harbour", "114.6", "(89.68, 146.19)", "258.53", "(220.52, 302.92)"], ["Northern", "69.30", "(44.52, 106.81)", "190.51", "(146.98, 246.37)"], ["South Eastern", "104.39", "(73.44, 147.62)", "170.31", "(129.20, 223.92)"], ["Southern Harbour", "103.60", "(75.31, 141.96)", "268.42", "(221.06, 325.60)"], ["Western", "90.16", "(60.13, 134.13)", "238.99", "(187.71, 303.71)"]]}, {"caption": "Table 5: Dementia Subtype by Age Groups", "header": ["Dementia Subtype", "Age Groups", "", "", "", "", "", "", ""], "rows": [["Dementia Subtype", "55-64 (n=18)", "", "65-74 (n=79)", "", "75-84 (", "n=233)", "85 & over (n=96)", ""], ["Dementia Subtype", "n", "%", "n", "%", "n", "%", "n", "%"], ["Alzheimer\u2019s", "15", "83.3", "69", "87.3", "197", "84.5", "73", "76.0"], ["Mixed", "1", "5.6", "6", "7.6", "24", "10.3", "8", "8.3"], ["Vascular", "1", "5.6", "3", "3.8", "10", "4.3", "14", "14.6"], ["Other subtypes", "1", "5.6", "1", "1.3", "2", "0.9", "1", "1.0"]]}, {"caption": "Table 6: Age Group by Severity of cognitive impairment (MMSE score)", "header": ["Age Group", "Severity of cognitive impairment (MMSE score)", "", "", "", "", "", "", ""], "rows": [["Age Group", "Mild", "", "Moderate", "", "Severe", "", "Unknown", ""], ["Age Group", "n", "%", "n", "%", "n", "%", "n", "%"], ["55-64", "7", "6.5", "3", "1.8", "0", "0", "0", "0"], ["65-74", "25", "23.1", "17", "10.4", "0", "0", "1", "12.5"], ["75-84", "60", "55.6", "88", "53.7", "1", "50", "5", "62.5"], ["85-94", "12", "11.1", "40", "24.4", "1", "50", "2", "25"], ["95 & over", "4", "3.7", "16", "9.8", "0", "0", "0", "0"]]}, {"caption": "Appendix 1: Dementia Register Form for persons on anti- dementia medication (D1)", "header": ["Dementia Register Form for persons on anti-dementia medication D1", "", "", "", "Registration no:(for office use only)"], "rows": [["Part 1:To be completed always", "", "", "", ""], ["Name:", "", "", "ID No:", ""], ["Surname:", "", "", "DOB:", ""], ["Address:", "", "", "", ""], ["Locality:", "", "", "Post code:", ""]]}, {"caption": "Table 8: Part 2: To be completed when applying for dementia drugs for the first time", "header": ["Educational Level completed:", "primary secondary post-secondary non-tertiary tertiary", "Social Status:", "S M W Sep Div"], "rows": [["Resident at:", "Own Home", "Nursing Home Specify:", "Other Specify:"], ["Living status:", "Alone", "With Spouse", "With Children Other"], ["Main Carer (Name):", "", "Main Carer (Relation):", ""], ["Main Carer (Tel No):", "", "Own telephone no:", ""], ["Referred by(GP):", "", "Date of referral :", ""], ["Reason for referral:", "", "Date of 1st attendance to specialist clinics:", ""], ["Diagnosis Status:", "", "Date of Diagnosis:", ""], ["MMSE score:", "", "Barthel Score:", ""], ["Dementia Sub-Type:", "Alzheimer's Disease Fronto-temporal Dementia Other Specify:", "Vascular Dementia Alcohol Related Dementia Lewy-Body Disease", "Mixed Dementia Lewy-Body Disease"], ["Clinic:", "RHKG Community", "MDH Other Specify:", "MCH"], ["Radiology:", "CT", "Date:", ""], ["", "MRI", "Date:", ""], ["", "SPECT", "Date:", ""], ["Behavioural and Psychological Sypt:", "Wandering Depression", "Aggression Shouting", "Agitation"], ["Dementia Treatment:", "", "Side-effects of Dementia treatment:", ""], ["", "", "Side-effects of Dementia treatment:", ""], ["Psychiatric Treatment:", "", "Side-effects of psychiatric medication:", ""], ["Psychiatric Treatment:", "", "Side-effects of psychiatric medication:", ""]]}, {"caption": "Table 8: Part 2: To be completed when applying for dementia drugs for the first time (cont. 2)", "header": ["Date of visit:", "", "", ""], "rows": [["MMSE score:", "", "Barthel score:", ""], ["Dementia Treatment:", "", "side-effects of dementia treatment side-effects of Psychiatric Treatment:", ""], ["Dementia Treatment:", "", "side-effects of dementia treatment side-effects of Psychiatric Treatment:", ""], ["Psychiatric Treatment:", "", "side-effects of dementia treatment side-effects of Psychiatric Treatment:", ""], ["Psychiatric Treatment:", "", "side-effects of dementia treatment side-effects of Psychiatric Treatment:", ""], ["Current housing Location:", "Own Home \u2610 Nursing Home \u2610 Other \u2610Specify: Specify:", "", ""], ["Part 4: To be completed always:", "", "", ""], ["Consultant:", "", "Signature:", ""], ["Reg No:", "", "", ""]]}, {"caption": "Table 10: Dementia Register Form for persons not applying for anti-dementia medication D2", "header": ["Dementia Register Form for persons not applying for anti-dementia medication D2", "", "", "", "Registration no:(for office use only)"], "rows": [["Part 1:To be completed always:", "", "", "", ""], ["Name:", "", "ID No:", "", ""], ["Surname:", "", "DOB:", "", ""], ["Address:", "", "", "", ""], ["Locality:", "", "Post code:", "", ""], ["Part 2:To be completed when first diagnosed with dementia:", "", "", "", ""], ["Educational Level completed:", "primary secondary non-tertiary tertiary", "Social Status:", "S M W Sep Div", ""], ["Resident at:", "Own Home", "Nursing Home Specify:", "Other Specify:", ""], ["Living status:", "Alone", "With Spouse", "With Children Other", ""], ["Main Carer (name):", "", "Main Carer (relation):", "", ""], ["Main Carer (Tel No):", "", "Own telephone no:", "", ""], ["Referred by (GP):", "", "Date of referral:", "", ""], ["Reason for referral:", "", "Date of 1st attendance to specialist clinics:", "", ""], ["Diagnosis Status:", "", "Date of Diagnosis:", "", ""], ["MMSE score:", "", "Barthel Score:", "", ""], ["Dementia Sub-Type:", "Alzheimer's Disease Fronto-temporal Dementia Other Specify:", "Vascular Dementia Alcohol Related Dementia", "Mixed Dementia Lewy-Body Disease", ""], ["Clinic:", "RHKG Community", "MDH Other", "MCH Specify:", ""], ["Radiology:", "CT", "Date:", "", ""], ["", "MRI", "Date:", "", ""], ["", "SPECT", "Date:", "", ""], ["Behavioural and Psychological Sypt:", "Wandering Depression", "Aggression Shouting", "Agitation", ""], ["Anti-dementia Medication:", "", "Side-effects from Anti-dementia medication:", "", ""], ["Psychiatric Treatment:", "", "Side-effects of psychiatric medication:", "", ""]]}, {"caption": "Table 11: Part 3: To be completed during all subsequent visits", "header": ["Date of visit:", "", "", ""], "rows": [["MMSE score:", "", "Barthel score:", ""], ["Anti-dementia Medication:", "", "Side-effects from Anti-dementia medication:", ""], ["Anti-dementia Medication:", "", "Side-effects from Anti-dementia medication:", ""], ["Psychiatric Treatment:", "", "side-effects of Psychiatric treatment:", ""], ["Psychiatric Treatment:", "", "side-effects of Psychiatric treatment:", ""], ["Psychiatric Treatment:", "", "side-effects of Psychiatric treatment:", ""], ["Current housing Location:", "Own Home \u2610 Nursing Home \u2610 Other \u2610Specify: Specify:", "", ""], ["Part 4: To be completed always:", "", "", ""], ["Consultant:", "", "Signature:", ""], ["Reg No:", "", "", ""]]}]}